Cada día somos más conscientes del poder que tienen las redes sociales y las influencers han demostrado lo unidas que están cuando el trasfondo es una buena causa. La australiana Jessica Stein (aka Tuula Vintage) nos sorprendió hace unos meses hablando de su embarazo. Las complicaciones y dificultades la acompañaron desde el principio y ahora es su pequeña hija quien lucha por su corta vida. Rumi tiene una rara enfermedad (tan solo dos o tres casos en el mundo) de la que no se sabe mucho y sus padres han decidido recaudar dinero para ofrecerle los mejores tratamientos a su disposición.
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Las influencers unidas
Chiara Ferragni, Julie Sariñana y un gran número de influencers no han dudado en sumarse en la iniciativa y aprovechar esa influencia que las hace estar en el ojo del huracán para ayudar a su compañera. A través de Instagram Stories, muchas de ellas han empezado a dar a conocer el caso de Rumi para que la gente pueda aportar su granito de arena en esta dura lucha.
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La carta más sincera
Jessica ha abierto su corazón y ha hablado de su situación real (y económica). Asegura que ella y su marido se han quedado sin nada de dinero ya que lo han invertido todo en el futuro de su hija, pero que aun así queda mucho por lograr. Usando el método Go Found Me, su página para conseguir donaciones empezó con una meta inicial de 60.000 dólares pero en menos de 48 horas han superado los 200.000. Según la propia blogger australiana, este dinero se destinará a un seguro privado exclusivo para Rumi, terapias específicas para ella, todo equipo médico requerido, además de apoyar distintas instituciones médicas que trabajan para la salud de los más pequeños.
[[instagram: {"shortCode":"BaTg-YIBR9n","title":"What would you do if your daughter was born with one of the rarest voices of all, and you had an international audience that could be open to listening There are a whole world of people out there who live in similar, and much worse situations to ours without anyone to hear them.\n\nI have always been extremely private and had planned to keep my pregnancy and children offline, until they could make the choice themselves. But sometimes you make plans and life happens. We have struggled to decide if we should keep Ru and all her strengths and her battles to ourselves, or to share. To find anyone to relate. Maybe if we could help educate even just one person there would be more understanding... I started my blog as an outlet of personal distraction, hope and simply starting my life over after being hit by a car. Maybe all of this travelling and experiences with life were just building me up for something so much more. \nMaybe it's not my voice that's meant to be heard, but hers... Pat and I have started a @gofundme page to try and help us help our Ru. We have been trying our best to avoid asking for help throughout this tough twelve months, but there comes a point where we are running out of options. If you would like to contribute, or share we would be thankful beyond measure. Or if you'd just like to learn a tiny insight to our Ru and her incredible accomplishments and complexities please read here httpgofundme.comour-little-warrior-rumi or through the link in my bio. xx","authorName":"tuulavintage","width":658,"height":null,"thumbnailUrl":"https://instagram.fmad3-3.fna.fbcdn.net/t51.2885-15/sh0.08/e35/p640x640/22430471_1157635174366852_7195157088044056576_n.jpg","thumbnailWidth":640,"thumbnailHeight":800}]]
Una rara enfermedad genética
Hasta ahora Jessica Stein no había hablado de la salud de su bebé de pocos meses de vida. Se sabía -por los pocos posts que había publicado en Instagram últimamente- que su hija no estaba bien, pero nadie era consciente de la gravedad del asunto. Rumi padece Maternal uniparental disomy of chromosome 2 y Mosaic Trisomy 2; una enfermedad genética que destaca por tener una copia extra del cromosoma 2. Tan solo hay 2 o 3 casos en el mundo con esta enfermedad y los médicos han asegurado que el caso con vida más longeva llegó a los 3 años de vida.
[[instagram: {"shortCode":"BaBeeB5BSsN","title":"\"Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.\" - Khahil Gibran \nOur little phenomenon, at home on better days. \n\nThank you for every single well wish, prayer and good vibes sent our way over the last few days, it has been overwhelming and dearly felt. We have been inundated with messages of support, advice and similar journeys from around the world. Some even made tangible offers that completely shocked us, like a local offering their spare room to crash in while we're living in hospital, and a $100 food voucher from friends we haven't seen in several years. These small gestures are ultimately huge, and are absolutely invaluable to us right now when all of our energy is best spent on Ru. Pat and I cannot thank you enough.","authorName":"tuulavintage","width":658,"height":null,"thumbnailUrl":"https://instagram.fmad3-3.fna.fbcdn.net/t51.2885-15/sh0.08/e35/p640x640/22429747_178699236030847_2377017098414063616_n.jpg","thumbnailWidth":640,"thumbnailHeight":800}]]
Una vez más, las RRSS sacan lo mejor de sí.
Fotos | Instagram @tuulavintage
En Trendencias | Esta blogger nos muestra una vida de ensueño, pero en realidad lleva meses sin salir del hospital
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